[karl66Participant]

Thank you for your replies and for sharing your experience.
I know people can have different effects from these treatments, and Myeloma varies widely between individual patients.
I do ask the medical team at the hospital about these things, and always write any questions down before a clinic appointment, in case I forget to ask. But it’s still comforting to know from other people going through the same thing, that I’m not alone in this.
Take care
Karl

[karl66Participant]

Hi Terry,
Thanks your post and for the helpful suggestion.
I’ll do definitely do that. I think the change of PJs to day clothes would make me feel less like a patient, and more like a normal person.
I’m a firm believer about trying to not let the cancer treatment be the main focus, and keeping a daily routine to stop it being on the mind all the time and taking over my everyday life/thoughts.
Best regards
Karl

[karl66Participant]

Hi marty2019

Many thanks for taking the time to share the info of your SCT.
Like you said, everyone has their own experience, but it’s been reassuring to me to see different people’s journeys through this, and gives me a much better idea of what may happen during my SCT, when the time comes.
I’ve got a great Myeloma team at the NHS hospital, and have been staying positive throughout this process.

Best regards
Karl

[karl66Participant]

Hi Rachel

Thanks for your reply, I’m glad this post has been of some help to you, and any others who may be going through the same…

Good luck with your SCT later this month and hope you get through it without any complications.

Best regards
Karl

[karl66Participant]

Hi Jane

Thanks for sharing your experience of the SCT.
I know everyone’s experience can be different, but it’s helped calm my nervousness about my own upcoming SCT a lot.

Best regards
Karl

[karl66Participant]

Hi Kevin
Thanks for your reply and the advice, much appreciated.
I’ll be sure to take some things with me to occupy the time, when the SCT happens
Best regards
Karl

[karl66Participant]

Hi Sam,

Thanks for contacting me. Your experience sounds very similar to mine. I appreciate the information about the IDRIS trial, I’m definitely going to look into it and also speak to my doctor about whether I would be eligible.

The Radiotherapy is going ok thanks, I get some fatigue, as I’m also doing physiotherapy to get strength and movement to return in my back after the surgery, but apart from that I’m ok.

Hope all goes well with your follow-up on Feb 28th.

Kind regards

Karl

[karl66Participant]

Hi Taff

Plasmacytoma was found in collapsed L3 vertebrae bone of my spine, when I had a CT guided biopsy.

Regards

Karl

[karl66Participant]

Hi Paula

Thanks for sharing your Radiotherapy experience, it was very helpful.

I’ve got my first session next week on Tuesday 30th Jan.

So hopefully things will all go well.

Kind regards

Karl

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