[mhnevillParticipant]

Hi Jean

Sorry Frank has got shingles. He really could do with taking some pills because shingles can leave residual pain that can last forever. As it is shingles it is something he could talk to his GP about. they normally say your need to be treated within seven days. I do hope he isn't in too much pain and that he does get on top of it. I'm not a Dr, but as the blisters are only just appearing it sounds like the infection has only just become shingles.

Don't know the name of drugs people usually take for shingles but know they really help.

Take care.

Mavis

[mhnevillParticipant]

Dear Jill

So sorry your mum now needs the extra treatment at her great age. At least she is having it by injection which I uinderstand reduces side effects. Do hope so. It must be a real worry for you, but there are good caring schemes to help. Make sure you speak to the hospital social worker if no one else is suggesting it.

All love to your mum.

Mavis x

[mhnevillParticipant]

Hi Terry

Like the others I wish you a successful harvest. And to think, I used to think harvest was about bringing apples and pears into church!

Hope you get enough for two SCT just for your comfort, but really hope that the first SCT, when it comes, will last for years!

Best wishes.

Mavis

[mhnevillParticipant]

Hi Sue

Glad to hear that at least your treatment has gone well. Do hope something turns up for Michael soon. In the mean time tell him to take all then rest he needs so that, when something comes, he will be up for it.

Love to you both.

Mavis x

[mhnevillParticipant]

Hi Tina

Sure you will have found all contributions helpful. Aren't they a lovely bunch on here!

Hi Carol

So glad your good phase continues, I found your comments about wigs really helpful because it is something I have worred about, even though it is, hopefully, a long way down the line.

Enjoy your riding and hope you get that door varnished!

Love

Mavis x

[mhnevillParticipant]

Dear Ros

Sorry for the loss of your friend on top of everything else. You were very brave to be going on your own today. I do hope you coped well and thast the service brought some comfort. At least your friend, like Michael is now free from pain.

I'm sure your counsellor is right – you it is as if you have lost three people. I can't remember the circumstances, but is there no way someone can help fix things with Rachael?

Sending you lots of positive thoughts.

Mavis x

[mhnevillParticipant]

Hi Dai

It really does seem one step forward, one back for you. Oh the frustration of not having enough pp! Sounds crazy doesn't it. Do hope you make the Trial. Something must work out for you soon. As you say, at least you respond well while on the therepy – trouble is the limitations it places on your life.

Sending all good wishes and love.

Mavis

[mhnevillParticipant]

Dear Bridget

My dear cyber friend, I could have wept when I read your post which I have just caught up with. I have been thinking about you and thinking I might post to see how you are. Now I know – what a downer. I shall put you on our daily prayer list so I send you positive thoughts each day! We all love your positive attitude on here. You are a great encourager for so many of us. We are now here for you.

If they can operate it is miraculous what they can do, as you know. I had already lost my mobility when they took out my plasmacytoma and racked me. They gave me all the standard warnings, about being near the spinal cord, but it was amazing. Although I am still walking with crutches, at least I kept my independance.

So glad you've got a new car and getting a new computer. Mind you.hope you don't find Windows 7 as frustrating as I do!

I have been enjoying some retail therepy! We just had to have a new car – engine died on our six year A Class after only 42,000 miles. I decided not to get it on mobility so my husband can have the security of one oif our own. I have also ordered a new suite today. Both of us were finding our old one uncomfortable. You can imagine my savings have taken a real dive, but I think "I can't take it with me!" All I want now is an electric scooter! Trouble is it is difficult to know which one to buy as it must be very portable.

Dear Bridget, we will all be rooting for you. I'm certain something will turn up trumps for you.

Hope you are having a good day with your grandchildren.

Much love.

Mavis xxxxxxxx

[mhnevillParticipant]

Hi Sue

So sorry to hear that you and Michael are having such a hard time. Do hope you both turn the corner soon.

Lots of love.

Mavis x

[mhnevillParticipant]

Hi Tina

Welcome to you too! Sorry you've had to join us. Do hope your shoulder is healing well and you are getting movement back. Was this because of MM or because of arthritis? I have both!

I haven't had a SCT but there are lots of folk on here who can give you advice.

All best wishes.

Mavis x

[mhnevillParticipant]

Hi Geri

Welcome to the Site. Sorry you have had to join us after evading it for four years. You have a lot to cope with with Crohns and your impending operation. You need all your positive thinking to help you thorugh. I know it does make a difference.

Sorry you are having all this bone involvement. Have you been on Zometa infusions? I can see that getting it in the head must feel frightening (I gather they call it "pepper pot"! By what I've read, it isn't as worringing as it sounds, but no doubt others who have had this problem will be able to help get this into perspective.

I fully understand you about hair loss. Fortunately I haven't had that problem yet, but dread it. However, I have realised from this site that lots of folk have very good shaped heads and their hair grows back well afterwards. Me, I've already thought I would get a wig, but I notice lots of folk don't bother. I gather they can be itchy. I'm a funny one – I think, if you think things through in advance they aren't so bad when they come. Do hope that's so for you or you will need to keep away from Tesco's!!!

Do hope you operation goes really well at the beginning of March. Keep in touch.

Best wishes.

Mavis x

[mhnevillParticipant]

Hi Tina

A welcome to the Site from me too – sorry you have had to join us. Perhaps you could give us a bit more information on how you got to the point of diagnosis: there are so many routes, as you will find out!

Lots of folk on here have has SCT and can give advice. Also, Trials give access to the latest thinking and very close monitoring. Do you know what Trial is being suggested?

You will have so much to take in. Age has some effect about treatment offered. Are you young?

Very best wishes to you. Do keep in touch.

Mavis

[mhnevillParticipant]

Hi Kerry

Sorry to have to welcome you to this special Site where we are all fighting the dreaded MM. You will find lots of support here.

No wonder you feel phased – you both have so much to handle at the moment.
First things first. If Melvin is still in lots of pain tell him to ask to see the Hospital's Pain Team, if he hasn't already. He needs all the help he can get to get the pain under control. It is hard to get into coping mose if you are in so much pain.

Next thing – don't panic. There are so many treatment options now that there will be one for Melvin.

I also had a plasmatoma on my spine which was surgically removed, followed by radiotherepy and, since them regular bisphosonates (now every four weeks by infusion). Did Melvin have similar follow up? I was then diagnosed with MM, but as my Para Protein levels weren't too high and my blood readings and kidneys are OK, I am not having any other treatment at the moment.

So sorry Melvin has all these complications with rib fractures.

Very best wishes to you both. Do keep in touch and do ask any specific questions – there will be someone on here who will have the answer.

Mavis x

[mhnevillParticipant]

Graham, All the best for Thursday.

Mavis

And Hi Tom

Thanks for that info. very interesting.
Keep battling on!

Best wishes Mavis

[mhnevillParticipant]

Hi Dai

I was thinking this too. Hope all is well.

Best wishes.

Mavis

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