[michelleakitt29Participant]

Hi Roz

I was so sad when I read your post, and I am so sorry that Michael is so poorly. I hope that you get some glimmer of hope at the meeting.

with much love michelle x x x

[michelleakitt29Participant]

Hi Roz

Aw thats lovely, and says exactly what it means.

with love michelle x x

[michelleakitt29Participant]

Hi Tom and Bridget

Glad she is not the only one that falls asleep lol! She has my Dad and Brother in stitches sometimes, She will answer crossword questions for My Dad while she is sleeping but doesnt know the answer when she is awake ha ha ha!! and the other day picked up a fan and started faning herself, gosh what is the world of MM coming to!?!?!

I took her shopping yday, cos she not been out all wk with the snow, and guess what? Yep she fell asleep in the wheelchair, not only pushing her round but at the tills too. Its really not a good look I keep telling her.

Well least I get a laugh, and oh what memories she is giving us!!

with so much love michelle x x x

[michelleakitt29Participant]

Hi Roz

Yes she is, and i have found her incredible to be honest, dont know how i would have got thro this without her! She goes beyond her job specification, she in my opinion is the best one to speak to, she gives straight forward answers, and thats what i like, good luck with thursday keep us posted.

with much love michelle x x

[michelleakitt29Participant]

I think they will be able to cancel/postpone due to the circumstances.
Have a lovely family tea tomoz, thinking of you.

with much love michelle x x

[michelleakitt29Participant]

Hi Donna

Thanks for the reply, have been thinking about you.

I am sorry that you did not get any better news, enjoy the time you have with him, I know its easy for me to say, I understand taking everyday as it comes and everyday is a bonus.

Mum is doing ok thanks, very very tired and itching with the chemo, but seems ok at the mo.

take care and love to all, keep us informed how he is.

with much love michelle x x

[michelleakitt29Participant]

Thanks Tom, she is doing reasonably well, extremely tired tho, have to watch for her falling asleep with hot drinks in her hand lol!!! Itching still driving her mad, she back at hospital on monday, so hope they will give her something for it this time.

with love michelle x x

[michelleakitt29Participant]

Hi Roz

The roads are so much better round sheffield now, I really feel for you not being able to get to see him, but you keep in touch with the specialist nurse, is it Andrea Foster??

with love michelle x x

[michelleakitt29Participant]

Hi Donna

Just wondered if you managed to get to the hospital for second opinion on thursday with the weather.

with love michelle x x

[michelleakitt29Participant]

Hi guys

thanks, I have given her some antihistamine today and that has helped, she is back at hospital tomoz to see how she is getting on, so she is going to mention to the team then. dont know whether i was right or wrong giving but im sure it can only help, when i looked at her back she has a massive red rash, and it sure did look itchy.

with love michelle x x

[michelleakitt29Participant]

Hi Kathleen

Difficult one, just try and stick to really high calorific value food as you can, but as Bridget says cheese and butter, however, i have to suggest CHOCOLATE!!!! well its an excuse to eat it, problem with cheese and butters is the high fat content, and that could lead to further problems. just looked on the web and it says to put weight on healthily is to eat simple carbohydrates, potatoes, pasta, beans, rice and high calorie fruit. hope that helps.

with love michelle x x

[michelleakitt29Participant]

Hi Scott and welcome, its my mum that has myeloma, but it is I who uses this site for advise and friendship.

As Debs says, hope you stay smouldering for a long time coming.

with love michelle x

[michelleakitt29Participant]

Hi donna

I have found this site a great help, glad you have spoken to the nurses and are getting that second opinion, please let me know how you get on.

Mum just getting over pheumonia but is doing well thanks.

with love michelle x x

[michelleakitt29Participant]

Hi donna

I think it is a good idea to get a second opinion at this stage, I know there are other drugs that can be used especially if he has had SCT, think bendamustine is one of them, speak to the specialist nurse here at myeloma uk, she should be able to help you with information.

I am here anytime you want to talk, you can email me if you want too its no problem michelleakitt29@hotmail.com

with love michelle x x

[michelleakitt29Participant]

Hi donna

what treatments has your dad already had? I am really sorry that you have been told there is no more that they can do. He sounds like they are still actively treating any problems, so why nothing else?

with love michelle x x

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