[mriampositiveParticipant]

I’m going into hospital tomorrow and the plan is to give me my chemotherapy on Monday. I plan to listen to the advice on this thread and take snacks and drinks with me. Is there anything else that is a definite requirement that I should take with me. I will leave my hair brush at home 🙁.

[mriampositiveParticipant]

Lakedis thanks for that information, I will keep taking the laxatives and speak to the nurse or doctor in the hospital.

[mriampositiveParticipant]

Hi All
Thanks for all the information. I have had 4 cycles of DVTD which unfortunately didn’t work in the 4th cycle. I have now had 3 cycles of KDR which have worked well. I was about to start my 4th cycle when I got a phone call to say that a bed is available for me to have the transplant on Monday next week. As I am on morphine I am taking laxido and senna to ease constipation, a lot of posts have said that they had diarrhoea should I stop taking these a day or two before going into hospital.

[mriampositiveParticipant]

I have been having issues with cramp in my legs and hands, I am going for some massage therapy at Cancer Centre Scotland. They told me to check with my medical team and I was advised that I should not have any deep massage and should not use any essential oils but fine to go ahead.

[mriampositiveParticipant]

Lilli
I know what you mean about the spreadsheet 😂. I live in Glasgow so will see if there is a group that I can join as it would be good to have other people’s experiences and maybe I might be able to help others.
Many thanks
Graham

[mriampositiveParticipant]

Lilli
That information is really helpful I hope your husband’s treatment is going well now that they have worked out what was causing the rash. I should be finished my 4th cycle on 3rd April this year with my son’s wedding on 1st July so will have to see what happens with the SCT timings 🤞.
I hope all goes as well as it can with your husband’s treatment. How are you coping with all this?
Kind regards
Graham

[mriampositiveParticipant]

Lilli
Many thanks for your comments, it’s good to have comparative information if you can share any more information I would be grateful.
Kind regards
Graham

• This reply was modified 1 year, 4 months ago by  kh0305. Reason: This post has been edited to remove personal details

[mriampositiveParticipant]

Hi Guys
Thanks for your comments and support.
Graham

[mriampositiveParticipant]

Hi Guys
I met with the consultant yesterday and it was the top man that I saw this time, he gave me a lot of information and answered all the questions that I had. I have IgG Myeloma and my pre-treatment level was 53g/l after my first cycle of treatment it is now 40g/l which he was pleased with. He discussed the SCT with me and has sent a letter to get me on the radar of the SCT team. I am feeling much more positive after that meeting and hopefully all will continue to progress well, I start my second cycle of treatment on Tuesday (10th Jan).

Regards
Graham

[mriampositiveParticipant]

Hi Nick
Thanks for your comments, I have a meeting with my consultant today and will hopefully get some answers to my questions. I am in my last week of my 1st cycle and all is going well, the only issue that I have had is damage to my left Achilles, I also managed to trip going downstairs last night and have pulled a muscle just below my left calf so hobbling about now( that will teach me
to have one hand free to hold on to the hand rail 🙁).
Regards
Graham

[mriampositiveParticipant]

Hi Rich
Thanks for your quick response.
Hopefully I will see my Clinical Nurse tomorrow and ask her for more information. I have a couple of big events next year that I would not want to miss if possible. My daughter’s 40th surprise weekend getaway on 10th Feb to forest lodges and my son’s wedding on 1st July.
Kind regards
Graham

[mriampositiveParticipant]

Hi Guys
Thanks for your responses. My treatment is going well, the only side effects that I have suffered so far are insomnia on the days that I have Dexamethasone (2 days per week 40mg at present). I have also had pain in my left Achilles but it is easing as I am resting it. I have only had one meeting with my consultant but I have an appointment with her on 29th December, my Clinical Nurse contact is coming to see me when I am having my Velcade treatment at the hospital tomorrow (Fri 23rd Dec), she may move the appointment back to early January depending on our conversation.
I would be interested in anyone giving me more information about the stem cell transplant i.e. the process, timescale, is it painful etc etc.
Many thanks
Graham

[mriampositiveParticipant]

Rich

I have started a post in the Treatment section, the information that you have given me about what to expect during my treatment is very helpful. It will be interesting to see if I get any more information from others.

Thanks again.
Graham

[mriampositiveParticipant]

Hi Rich

Thanks for the information, it is very helpful, I appreciate you taking the time to get back to me.

Kind regards
Graham

[mriampositiveParticipant]

Hi Rich

Many thanks for all of the information, it is very much appreciated. My consultant fired a lot of information at me at my first (and only) consultation with her but nobody has sat down and explained the full process with me. The information that you have set out is the most information that anyone has given to me. I have had a few booklets given to me that explains the process.
In your reply you asked “Do you have IgG myeloma or light chains? What is your pre-treatment level?”, my answer is I don’t know, I have only been told that I have Multiple Myeloma, I presume that I may need to ask my consultant when I next see her.
I am scheduled to start my treatment on Tuesday 13th Dec. Hopefully it will all go to plan this time.

Many thanks
Kind regards
Graham

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