[scatter05Participant]

Hi Suzi
This is a tough thing to go through and I think we all need the help of others on this rollercoaster. I have a few wonderful people who always make me feel better and sticking with your positive crew is a must. I also started writing things in a book that made me feel better so when I feel anxious I can remind myself of them to perk up. #never give up , is one! I have tried a mindfulness course also to try keep mind from wandering and to enjoy the moment. Sometimes it is the little things like reading a novel or even tiding up which help. I did a jigsaw in the summer which got me through a very difficult time but without that I may have driven myself crazy.
You have coped this far in and will do again , the horrible time now will pass and you will feel better when new treatment kicks in.

[scatter05Participant]

Very hopeful 100% . The bispecifics which are being trialled sound like they are giving excellent results in a large cohort , the future is certainly looking a lot better with treatments for us all.
All the very best xx

[scatter05Participant]

Hi Mulberry

So sorry to hear about your relapse. Your posts have been such a help to me and I just want to wish you all the very best on the next stage of treatment. I send you strength and love at this time xx

[scatter05Participant]

Hi
I had my SCT in march and I had very achy legs for ages even after the 100 days. It felt bony but I guess could have been because muscles not used as much. It is so much better now though. I hope your pain gets better soon too and all the very best with recovery .
❤️

[scatter05Participant]

Hi I have just had my first vaccine post SCT . I was given a covid phone number to ring ,which I could post but it was for my county only (Lancs) . They then found a random clinic that had stock and gave. I got the number from my G.P.
It took a while to organise as like you say not giving the vaccine in general now.
I presume I ring them again for my second .
Hope that helps .

[scatter05Participant]

Hi

I am 90 days post SCT and still get waves of tiredness. I actually find that if I am more active I feel less tired. I am not sleepy though just a something pulling me back sort of feeling.
Over all I am definitely feeling much better. All the best for your recovery .

M

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