[VickiParticipant]

Hi all,

Tom, firstly your kind words make us feel humble….it's lovely to know there is such support x. We will have that shoulder charge in our minds eye at every turn! :-).

We have had a lovely day today….Colin has had really good energy, and has said he feels hungry which is great to hear.
He's looking pretty cool at the moment, another new hat today to go with the new short style! A lovely lunch in the Cotswolds, and a little trip around colins home village. It is so nice to get out and about and Colin to feel reasonably well with it. Chins are up, and shoulder charge at the ready LOL!

It's not easy, this is all new, but it's so important to keep positive…..and thanks to all you guys, and our two penneth we can keep each other going :-), maybe Toms vodka tonic might do the trick! (only a small one!). Enjoy the rest of the weekend all x

Vicki and Colin x 🙂

[JoanneKParticipant]

Hi vicki and Colin…

Just wanted to wish you well with harvesting and sct…fingers crossed for you!

Take care

Joanne xx

[VickiParticipant]

Thanks very much Joanne

Then date for harvest is getting closer….injections start Saturday. :-). We are holding our breath and everything crossed. That's quite hard to do LOL 🙂

Vicki and Colin x

[tomParticipant]

Hey Its Sat and I think the Ijection are starting??? Good Luck and Hope all goes well.

Thinking of you both

Love Tom "Onwards and Upwards" xxx

[VickiParticipant]

Hi Tom,

Yep injections started yesterday morning, each day with the funded drug of prelixafor on Tuesday night at 10pm. Down to Bristol Wednesday for the third and final go. I am absolutely dreading it….I know this drug is supposed to be 80percent successful but the two other disappointment s have been so hard, for both of us in different way :-).

A friend of my parents has mm too, diagnosed not long after Colin. He has just had gcsf alone, first go, had a score of 31; and harvested his cells for SCT first go. Great for them, really pleased but it just heightened my anxiety! Still I suppose what will be will be.

Making the most of reasonably well time;lovely meal Friday night with a bit too much wine :-). No wine last night, well off it ;-), fingers crossed for us. Let's hope those cells finally give way 🙂 and break the 2 million required!

Hope all well with you 🙂

Vicki and Colin x

[tomParticipant]

Hey Vicki and Colin
And you know I have everything crossed for you both, Lets hope its money well spent 😀 as am sure it will be.

Vicki just havea few glasses of wine tonight it is good for you and let Colin have a few Vodka's those worked for me also.

Lets hope those little Stems walk out on their own rather than being Dragged out.
I have everything crossed for you two and am sure it wont be long before I read "Many Thanks from Vicki and Colin "Onwards and Upwards"

Lots of Love and Hugs

Tom "Onwards and Upwards" xxx

[bikerchrisParticipant]

Hi Vicki and Colin, We are thinking of you both on your big day, and I guess that Colin will be kept in overnight for the Plerixafor jab which is nothing dramatic. They are a brilliant team in Bristol, and have a great sense of humour which helped me relax and get on with the job! My results were low on my first attempt, but the P really did the job, and kicked the cells out for collection. I was probably a bit tense too, but the results were good on day 1, and my readings even higher on Day 2. They also allowed for a third day just in case, so they will do all they can to make sure they get all they need.
There is no need to worry, it is a good idea to get a good night's sleep if you can, as it is a pretty tiring day. Be ready to have plenty of extra calcium when it is offered, as I needed some every hour to keep me feeling ok, but it was not too bad.
Very best of luck from Me and Lena, her support is helping me get through this b…y illness, and I am sure you are doing the same for Colin, and together you will kick it into touch!
We are all behind you, be sure to let us know how you are getting on,
Chris and Lena xxx

[JacquieParticipant]

Hi Vicki

Just wanted to say hope all goes well tomorrow will be thinking of you both. 🙂

[VickiParticipant]

Sorry chris

I read your post on your thread first!. Thanks for your good wishes. We live in Gloucestershire so Colin is administering his own plerixafor at home tonight at 10pm which I am a bit nervous about and then we travel to Bristol in the morning. If the harvest starts and they think he needs more plerixafor we then have to go back from Bristol to Gloucester, doing the same thing tomorrow night, so who knows. As I said on your thread Colin is feeling really rough, has slept loads today and has some pain in his back, in his knees and the joints and knuckles in his hands. Did you notice that?

Do you know it's sp heartening to have the support of all on this forum, and thanks to you and Lena as you both have your own adventure coming up shortly. If all goes well for colins harvest well all be going through it together!

Colins asleep and i feel very restless. I can't wait to get down to Bristol and in another way don't want to go if there disappointment ahead…..I must stop this negativity!, 🙂

All the best Nd hope you can enjoy your time before SCT.

Vicki and Colinx

[VickiParticipant]

Thanks very much for your good wishes Jacqui and Joanne,

Keep everything crossed for us ! Surely it's got to be third time lucky 🙂

Vicki and Colin x

[jmsmythParticipant]

Vikki sending you loads and loads of positive vibes for tomorrow. Thoughts and prayers for Colin. 🙂

Take care
Locke jean xx

[HelenParticipant]

Dear Vikki
Hope it all goes well and that the cells stop sticking and start moving.
Love Helen

[bikerchrisParticipant]

Hi Vicki, I can understand that you feel restless, but tomorrow will soon arrive! Did Colin have double doses of the GCSF, or single ones? – I did double doses for 4 days in the evenings. I would say it is a good sign that he is having a strong reaction, the first time I didn't feel much, but with the double doses I did have aching legs and back – I made the comment on the site that my legs were aching, but it got worse and it must have been the GCSF. It must hurt a bit to have the poor little cells pulled out of the bone marrow!
Lena says she is confident that he will do well!
I would bargain on doing a second day though as it is quite a slow process, but on the other hand you may be lucky – we are all different which is why it is difficult to give advice, and why the doctors tend not to say too much.
Go for it Guys!
Chris

[AliParticipant]

Hi Vikki and Colin

Good luck today, I will be sat at my desk thinking of you:-)

Love Ali xx

Hi Helen

Long time, no hear! How are you doing?

Love Ali xx

[tomParticipant]

Hey you all hope you dont mind me tagging in here to wish you all the best for the SCT xxxx

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