[StanstanParticipant]

Hi Tony
It must be wonderful being on nothing. How long have you been more or less drug free? How are you feeling? Are you in remission? Where are you on the trials. You look well.

Best Wishes
Charlie:-D

[StanstanParticipant]

Hi Tom
So far, so good. Upwards and onwards, fingers crossed. Touch wood.
Power of positive thinking. So glad you are both OK. that was wonderful news.

Love Us x x:-)

[StanstanParticipant]

Hi Tom & Dai

Thanks for everything, still a trying time but Charlie is doing so well at the moment. Thanks for all the advice and love. This site is so good for support. Just hope infection stays away. He has to go on a nebuliser once a month and we will be randomised again next week – dread that in case it is lenalidomide – nightmare another PE we can do without. Maybe it will be no medication.

Thanks for being there. Will let you know how it goes.

Love Charlie & Mary – Upwards and Onwards x x 😉

[StanstanParticipant]

Thanks Megan

All is going well so far. We are walking the dogs. Charlie had fun with the children. My daughter in law cleaned everything the day he came home.
So far, so good. Fingers crossed. Dreading the move, something we could do without but there you go, these things are sent to try us.

thanks so much Megan x x

[StanstanParticipant]

Hi Everyone

Charlie is now home. He was in for 2 weeks and 5 days. I took all your advice and so far he is fine. He had no sickness, runs or sore mouth and – no temperature. The consultant said that this happens to only one in ten.
He is doing things, coming for dog walks.
Thanks so much for your advice. Will keep you posted on the next hospital visit.
What would we do without this forum, it really helps.
Love Mary & Charlie 🙂

[StanstanParticipant]

Excelent Tom. That is all we all wish for. Congratulations and Upwards and Onwards. x x

[StanstanParticipant]

That is Wonderful Tom. Good Luck to you both. x

[StanstanParticipant]

Hi Vanessa

Charlie had Velcade before SCT and it didn't make much difference.
He went in last week for SCT so it is early days. I can understand you being angry. Don't you automatically get maintenance on the X! Trials? Or was he randomised for none?

Isn't this the most dreadful journey?
Love Mary

[StanstanParticipant]

Hi Steve

Thanks, that is really helpful. Did you have osteoporosis before stem cell transplant? How long was it before you could garden and travel?
Thanks for your help.
Charlie & Mary

[StanstanParticipant]

Hi Vicki & Colin
Thanks, maybe now we can go onwards and upwards as Tom says. Isn't it such a long journey? Have you changed your diet at all? Some say that it helps.
Love Charlie & Mary

[StanstanParticipant]

Roll on Peter.
Hope it happens soon, can't wait fro stem cell to be over.
Love Us

[StanstanParticipant]

Hi Tom
How are you? It was great looking after the kids but really tiring. We think we are a bit old for soft play and coming down bumpy slides. Never mind, maybe it is keeping us fit!!!:-)
Love Charlie & Mary

[StanstanParticipant]

Thanks Chris

We just didn't understand why the pp's had gone down so much within 3 weeks. Can't wait until it is all over. Are you OK now?
Charlie & Mary

[StanstanParticipant]

Hi Everyone
Not been on for a while, thanks for all your help and hope everyone is OK.
We have been away looking after our grandchildren. Stem Cell still planned for early July. Paraproteins were 13.2 at the end of April now they are non detectable. What does this mean? Has anyone else gone down like that?
Doing fine on Velcade so far.
Thanks again for all your help
Love Charlie & Mary 😉 Upwards and Onwards

[StanstanParticipant]

Hi Tony

Thanks, it is great to know that I won't have to keep the dogs away totally. Can't wait until it is all over. Are you in remission?

Love Us x:-S

[Author]

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