[TinaParticipant]

Hi Gill,

I too do not look at the site very much these days. My darling husband died in May 2011 and I remenber every last detail of his last few days alive just as if it was last week. Pat is definately looking over my shoulder I can hear him telling me off only too often?
I always wondered what you were giggling about in your photograph, now I know!!

Take care

Tina XX

[TinaParticipant]

Hi,

My late husband Pat did very well on Bendamustine in 2010 for over a year with very little side effects. Unfortunately he was a long way down the treatment road before he started it, who knows, it could have worked for longer if he had started earlier.

Good Luck

Tina

[TinaParticipant]

Hi Gill,
I have a kitchen thing going on too. My dear husband Pat died in May 2011, seems like yesterday. Pat and I had been together for 35 yrs and had moved house a number of times, I guess many people move items with them that they should really throw away. Well we had a really old tea towel that Pat had when I first met him when he was living in a bedsit. We brought that old tea towel along with us each time we moved and it is still in my kitchen today! Last week I was staring at it thinking that I must throw it away but as holey as it is I just can’t bring myself to do it. I know Pat would think I was raving mad for keeping it but it just holds so many memories. No one would believe me if I told them an old tea towel made me cry :0
Best wishes

Tina XX

• This reply was modified 9 years, 8 months ago by  Tina.

[TinaParticipant]

Hi Rosie,

I too don’t visit the site too often now since my dear husband passed away in May 2011.

So sorry to hear your news. I hope you get the support you need from family and friends.

Take Care

Tina XX

[TinaParticipant]

Dear Eve,
I am sure you had many funny stories to tell and listen to today as you were celebrating Slim’s life. As you leave one “club” you are joining me and other cyber friends in another.
Best wishes to you in your new life.

Tina xx

[TinaParticipant]

Dear Eve,
Although I haven’t posted for a while I have been following both Slim’s and your journey with MM.I felt his time was close and truly dreaded the pain that will be with you now.
I am thinking of you and although I know you have the strength to cope I hope you have family and friends to help you through.

Tina XX

[TinaParticipant]

Hi Charlie and Mary,

If you are referring to the area of Buckinghamshire I can certainly recommend it. My husband had very good treatment in both High Wycombe and Stoke Mandeville Hospitals. There never appeared to be an issue with trying new treatments or spending money on treatment.

Hoipe this helps

Best Wishes

Tina

[TinaParticipant]

I have just read of our Dai's sad passing on Debs post on Facebook. He will for sure be greatly missed by everyone on this site living the myeloma fight. He will also be missed by me and many others who have enjoyed his wit, songs and comforting words over the past years.

My deepest sympathy goes out to his darling wife and family.

Safe journey
Tina XX

[TinaParticipant]

Hi Roz,

Good to hear from you again and know that you are coping with your new life.
I have been very tearful lately but realise that life will be like that for me for many years to come. Off to Vietnam this week on a photography holiday – can't wait.

Tina XX

[TinaParticipant]

Dear Mari,

You really did celebrate Stephen's life, I am sure he would have loved it.

Take care, keep in touch

Love

Tina XX

[TinaParticipant]

Dear Gill,

I think you are doing brilliantly too. After two and a half years I still have problems selling anything that belonged to Patrick. I find having a "conversation" with him helps – he was so practical and I can hear him answering "what on earth are you keeping that for?"

Sue I still have all of Patrick's clothes in the wardrobe too, you are not going backwards it's all part of the grieving process.

Gill, I understand the cheese – but what about Marmite surely you are going to take a jar with you!!

Love Tina
XX

[TinaParticipant]

Eve, you can email me anytime you like at pa.davis@virgin.net

Although I do not post very often I do still follow your stories. I would like to be more supportive to carers but quite often just cannot find the words.

I forgot I mentioned the answerphone – I still listen to it often and yes it does make me smile 🙂

All the best

Tina

[TinaParticipant]

Hi Gill,

I wish you all the very best for your journey and I am sure it will be tough especially on a long drive on your own when you have plenty of time to think.
Although it's already been a year now Stephen will most certainly be with you throughout probably whispering for you to slow down!

My very best wishes to you

Tina X

[TinaParticipant]

Hello Eve,

I can only relate my experience and do not in any way believe it will suit anyone else.
Although Pat and I held out to the very last we both accepted that there would be no fix. I gave up work approx 6 weeks before Pat died knowing the time was near as he was suffering horrendously. That decision was the best I could have made – we shared 24 hrs a day talking with each other about everything including his fears, funeral and also the good times- I was able to support him in everyway both physically and mentally which for me after his death has given me some degree of comfort. Much like Gill Pat was more worried about me than himself. Even though he was suffering so much his mind was fixed on the things he had to do around the house before he was unable.
Pat was a very good, proud but giving man not ever asking for help from others. I cared for him without smothering which I know he appreciated. I am happy in the thought that I have no regrets and left nothing unsaid.

Very early one morning as he was staring out of the window, two days before he died Pat told me " it will not be long now" and then it struck me how he had come to realise hope was gone.

I wish you both all the very best and strength to you Eve,

Tina XX

[TinaParticipant]

Dear Mari,

I wish I could be with you to just

My husband Patrick died two yrs and three months ago at the age of 58 – I really feel your pain and your last line, much like Gill, is the way I would describe Patrick the love of my life. How do you go on with your life?It will surely be a while until you remember the good times, but very gradually it will happen – trust me.

I hope Stephen's funeral brings a smile to your face as well as the tears which are bound to come. We will all be here to support you when you are ready.

Tina XX

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