[annlynnParticipant]

hy. yes my back pain was very bad but on close inspection i had two broken vertabra so that hadnt helped i was initionally told i had kidney infection then when that didnt clear up with antibiotics further investigation showed my myeloma . i have been to a info r mation day today at ramside hall very good but lots of people there were diagnosed completly diffrently to me were all diffrent. good luck. keep us all posted ann

[annlynnParticipant]

hy there . difficult one to answer. my situation was chronic back pain protien present in urine and bloods after tests for other things kidney infections ect i was sent to hemotologist x rays mri scan and bone marrow biopsy which. unfortunately showed myeloma .. all very scarey i cant lie the unknown is difficult i was dealt with quickly and efficiently by my local hospital team six secions of cdt a short break then a stem cell transplant last august im in remmision doing well as many on this forum are its a good one to be on these people have been there and most of us got the tea shirt as they say ..keep positive until you know what your dealing with your young. and as you reamarked fit so. your in a good position. best wishes to you take each day at a time and ask anything you want xx ann

[annlynnParticipant]

hy nickym intresting to read your post always think carers have a rough ride with this disease we fight the best we can but our loved ones bear the brunt of that fight. My husband plays golf when he can which relives the pressure of the everyday stuff iam a new MM sufferer only one year since sct and nearly two year since diagnoses your husband has n
done so well 18 years i am in awe i hope im as lucky as him. i never look at statistics about prognosis im not brave enough to do that. good luck hope something else will do the job for your husband for much longer. xx

[annlynnParticipant]

Thank. you for letting us know it is always very sad to hear of a myeloma patient loosing the fight . I didnt know this lady as ive only been. on. the site a short while after sct last August but i do recognize you from the myeloma beacone and have followed your blog . sincere sympathy to this ladies family. at this sad time xxx ann quinn

[annlynnParticipant]

hy jules so sorry you need to be on this forum. this disease is not selective of age or circumstances is it. . Im sorry you rushed to purchase a wheelchair social services whould have sorrted you out . Do. you not have anyone who could claim carers allowance someone close who doest work r
the 20 hours it can still go in your bank if they could help you with some of the everyday careing. I can tell from your post its all getting to you understandably talk to your close family and take a little bit of me time . ps. after my sct my husband was back to work full time but i was ok at home he left me a sandwich ready in case i needed it didnt have much appetite to be honest but i wasnt confined to bed other than a nap afternoon if needed . take care

[annlynnParticipant]

so good to hear your on the road to re overy maybe a slow one but thats fine. which hospital are you in ?best wishes … annlynne

[annlynnParticipant]

misterboy you are right ive always found the positive posts such a boost just like you i try to be glass half full not empty. !!! there are a lot of positives on this site so keep looking. Im. remmision one year now. good experience in newcastle freeman. so up to now all good. always try to. plan myself. little things to. look ahead to. helps me focus. xx.

[annlynnParticipant]

so lovely to here. the. good. bits glad hes doing well and your taking. back controll of your lives. we had a holiday a few months after transplant and i felt fine but each month felt bit stronger good. time to look at those travel books and plan the next one good luck to you. enjoy. making and fulfilling your dreams xxx. ann

[annlynnParticipant]

hy rossanna I had my transplant in the freeman newcastle last august. my husband and daughter and son came in every day i was in seventeen days good days. and a few awfull days . you dont say how old mam is ? my daughter brought me pretty turbans for as soon as my hair came out . lovely shower gells from molton brown. with excotic. names to remind me of the far flung. places id still plan to go to . perfume. which i wore everyday after shower. no mater how rough i felt i was in my own room and the nurses loved to come in. be ause of the nice smells. hospital always smells awfull.dont they . i had magazines but like david said somedays you jus cant be bothered. you just rest your body and let it repair .The strong chemo isnt pleasent. and take her loads of ice pops to suck before during and after the stuff goes in. it really helps with the mouth problems . Remember when mam hits the bottom which most people do she will turn a corner. and improve .I found rebeccas posts helpfull when i went through mine she kept me positive .. ps. a nice cosy wrap is handy as it was chilly in the room at times hospital bedding. a bit impersonal. so something pretty xx. hope it goes well for your mum. best wishes. ann xx

[annlynnParticipant]

nat.. the one thing about the. journal is when i look back now i know if need be i could do it again luckily ive got stem cells stored for the future if required. probabley because i know the rough days do get better. I remember on night having infection that they coudnt locate i had a chest x ray in my bed two oclock in. morning also a ecg and. numerous drips all through the night but. two days later thecjournal tells me i put a bit make up on. ha ha xx.

[annlynnParticipant]

so gladd hes doing ok. have been really. concerned about. the. silence from him hope hes on the mend and will post soon to update us all. im. not on facebook. so if anyone hears of his proggress please let us know

[annlynnParticipant]

hy. nat. im in agreement with. chris it is a tough journey but the way your mum is feeling is pretty much the norm. the next few days hopefully. shell turn a corner and feel a little better each. day .I was discharged on day seventeen after my sct last august im in remmision. and apart from the. tiredness t 🙂 at overtakes sometimes. im. doing. well. best wishes to mam. I wrote a journal each day while in hospital appart from my. worste three days when i diddnt have the strengh to. hold a pen ha ha good luck with everything. it will get better xx. ann

[annlynnParticipant]

so. sad for you this morning reading yoour news nothing prepares us for the end even though we know the disease is a dreadfull one. my prayers are with you. ann

[annlynnParticipant]

hy vanessa. ive been in remmision for a year after sct laust august i am constanntly anemic consultant. says lots of people just are im on a three month course of iron but other than that everything. fine. try not to worry so much easy words i know but as eve one of our long term myeloma carers used to say. dont waste time worrying about tomorrow enjoy every day good luck. Ann xx

[annlynnParticipant]

get well soon andy we need your positivity on this forum best wishes to you and steph Ann xx

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