JanetJordan

  • faith replied to the topic Memory Lose in the forum General 8 years, 11 months ago

    I do miss not getting engrossed in a book, I could read for hours at one time. Will have to get some magazines and look at the pictures.
    Have watched that film Jeff and I would say do one task at a time!!

    Janet X

  • I have started using coconut oil on my nails thanks Dorothy.
    I have vertical ridges on all of my fingernails, Karen, they seem to be getting worse just lately.
    All these things we have to put up with but we are still here which is good.

    Janet X

  • faith replied to the topic Memory Lose in the forum General 9 years ago

    Very good responses, my husband, Roger, often tells me that he has told me something which I can’t remember. He is trying not to get too annoyed with me..
    Thanks Richard for your outlook on this!
    Take Care

    Janet X

  • faith replied to the topic VELCADE AND THALIDOMIDE in the forum General 9 years, 1 month ago

    I also felt like a very old lady while on treatment. I had/have the same side effects as you Carol numb toes as well as finger tips.

    Janet X

  • faith replied to the topic Memory Lose in the forum General 9 years, 1 month ago

    Thanks Tony, it takes me ages as well to read a book I have to renew my book at the library quite often. My hands and feet are cold all day and night.
    Regards to you too
    Janet X

  • faith started the topic Memory Lose in the forum General 9 years, 1 month ago

    Hi All,
    Has anyone after having a Stem Cell Transplant suffered from memory lose and lose of concentration (I so loved reading books and getting engrossed in them can’t any more).
    I also have cold hands and feet (I wear thermal socks doesn’t help much), I put that down to the Thalidomide.
    Thanks
    Janet X

  • faith replied to the topic VELCADE AND THALIDOMIDE in the forum General 9 years, 1 month ago

    Hi Amanda, I was on Thalidomide for 12 weeks prior to my stem cell transplant. I must admit that I didn’t feel too good on it I felt like an old woman I was only in my late 50’s but I am still here which is the main thing! Few problems with my hands and feet now they are a bit sensitive I often drop things because I can’t feel them. But be…[Read more]

  • faith replied to the topic Still feeling good in the forum General 11 years, 2 months ago

    No one really knows how we feel thats why it is good to go on this forum site.
    It is always best to keep positive and not let MM beat us.

    Keep with good thoughts
    Janet x

  • faith started the topic Still feeling good. in the forum General 11 years, 2 months ago

    Just like to tell you all, 6 years after after my sct I am still good, protein is fluttering a little bit and I must drink more water, for my kidneys, but apart from that all is well. Just want spring to come now to warm my bones.

    Keep positive
    Janet

  • faith replied to the topic Hair in the forum General 11 years, 7 months ago

    Thanks for all of your replies.
    I had my SCT just over 5 years ago, I lost all of my hair and it did come back thick and curly. This past couple of years it has gone dry and brittle. I think that I should have it cut short really wanted to grow it though. Looking at it another way, I am still here even if my hair looks naff :):)
    At last, I…[Read more]

  • faith started the topic Hair. in the forum General 11 years, 7 months ago

    Hi, to you all

    My hair is vey dry and brittle, never like this before MM. It has now started to get me down,it never looks nice. I have tried all different shamppo's and conditioner's with no difference to my hair. Silly question but have you any ideas what I could try next?

    Thanks

    Janet

  • faith replied to the topic Wheatgrass in the forum General 11 years, 10 months ago

    Hi Tom

    I am fine thanks, still got a little bit of a cough though. I am also drinking green tea but just first thing in the morning, must try it all the time. I do also try to eat healthily, lots of fruit and veg .
    I should come on here more often sorry!!

    Love Janet

  • faith replied to the topic Wheatgrass in the forum General 11 years, 10 months ago

    Hi Dai and Janet,
    I am in remission and I do eat and drink everything. I suppose that you could take allsorts of vitamins and still not be well.
    Janet is the best name ever!!

    Janet

  • faith started the topic Wheatgrass. in the forum General 11 years, 10 months ago

    Hi

    Has anyone taken Wheatgrass and if so has it helped you in any way. I am going to ask my consultant next Monday about it. Daughter-in-law has been taking it for irritable bowel and she feels great.

    Thanks
    Janet

  • faith replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 1 month ago

    Hi Gill

    Sorry to hear about your husband, this is when we know that we are not on our own with this MM.

    Love
    Janet
    xx

  • faith replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 1 month ago

    Hi Carol

    I know that a lot of things have changed after 5 years. I was on Thalidomide, have a few ongoing side affects but at least I was in remission for 5 years.I can also have another stem cell transplant.

    Thanks
    Janet
    xx

  • faith replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 1 month ago

    Hi Tom
    Still got this chest infection, went for an x ray. If no better by Friday have to take stronger antibiotics. Fed up with this stupid cough now.

    Love Janet
    xx

  • faith replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 1 month ago

    Hi Eliz
    Sorry that I haven't replied before now, still got this chest infection.
    To your question I go to The Royal Worcester Hospital, Worcester.
    Hope someone will be able to tell me where I can park.

    Love
    Janet
    xx

  • faith replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 1 month ago

    Hi Tom

    Just giving you an update on my cough.
    Went back to the Dr's this morning as my cough was getting worse, I am now on antibiotic's because I have a chest infection. I will be glad when they start working so I can get a good night sleep.

    Take care

    Janet

  • faith replied to the topic Relapse after 5 years in the forum Newcomers 12 years, 1 month ago

    Hi Tom

    Still coughing, went to my GP but she can't give me anything, just have to wait until it goes on its own. Could take a week or more. I am so tired with not much sleep.
    One of the "Yellow Liner" member

    Janet

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