[maggiemayParticipant]

Hi Sue glad you are doing well and starting to think about travel. My husband has myeloma since 2011 and had a SCT in 2013 I am the one who looks after travel arrangements. We have used a few companies but I have found nowicantravel to be very competitive. It depends a lot on where you are going America, Canada, Asia can be expensive whereas Europe is cheaper. Cruising can also be expensive. Six months after SCT I booked a 2 week Caribbean cruise before looking at the insurance it cost £630 but worth it for peace of mind. Thankfully it has reduced in price February this year was £340 to the Caribbean. A yearly policy for Europe was £170. I declare everything including his heart attack 2years after SCT. Like anything else you are buying pays to shop around. Hope this helps and enjoy your travels. Mags

[maggiemayParticipant]

Hi Solly

I am glad you are thinking positively and taking hope from these messages. Like Tom we very much live for the day as regards insurance I wouldn’t travel without it particularly the Caribbean,as you would know,any urgent treatment would require an air ambulance to the USA and we all know what they charge for treatment. I shop around and have also used nowicantravel.com for the last couple of trips. First trip to Caribbean after SCT cost £700 but this time it was £360 and that is declaring everything, including the last time he sneezed, Europe is much cheaper. It has been said before, this illness is a marathon not a sprint enjoy your good days and you will make the beautiful Caribbean soon enough. Take care and to quote the wonderful Tom’s mantra onwards and upwards. Maggie xx

[maggiemayParticipant]

Hi Tom

Hope you enjoyed your wee tipple yesterday. Hubby keeping good and we are off
to the Caribbean on the 18th Feb he has some back pain and gets tired quickly but other than that keeps well. He was diagnosed in 2011 with a plasmasytoma in his spine had 25 sessions of radiotherapy followed by CDT and a SCT in 2013. He doesn’t dwell on his condition and I don’t think he even knows this site exists but I have kept a watching eye on this site over the years and followed you, Dia, Eve, Stephen and Jean. I have always admired how you have dealt with things and to be honest have looked to you as a benchmark. I hope things work out well with your treatment and you continue to enjoy life. Cheers onwards and upwards. Maggie xx

[maggiemayParticipant]

Hi Tom my husband has myeloma and I have been on this site for 8 years and have followed lots of posts and remembered that you always liked a wee vodka or two hope this is still the case and it still fits in with your medication. Hubby doing well 6 years post SCT and enjoying life.

Always loved your tag line onwards and upwards.

[maggiemayParticipant]

Hi Richard I don’t post often it is my husband who has myeloma but I remember your posts and know that you live in Germany and have a young child.  You have come a long way with this horrible disease as well as learning a new language.  Hopefully there are lots of options open to you and I hope you get one that works a long time.  As Andy says every day is a gift enjoy it.  Mags

 

[maggiemayParticipant]

Hi Sabs you are right it is a long haul and every day feels like a week when you are waiting on tests, appointments and treatment.  Six years on and I can’t say you get used to it but it does get easier, the first two years I couldn’t even say the word without crying.  It’s like the elephant in the room won’t go away but we are doing our best to get on with live and hope it’s a long time before it raises its ugly head again. Take care. Maggie

 

[maggiemayParticipant]

Hi Guys

I don’t often post here but felt your situation similar to our own.  My husband was diagnosed in 2011 after back pain, funny enough thought he had hurt it pulling his motorbike onto the main stand.  Took a year of radiotherapy and chemo for him to get to stem cell transplant but he got there and thankfully in remission since.  Advised not to ride the bike but ignored that advise and weather and health permitting out he went, actually bought a new bike.  Can’t say that it leaves your mind but it does get easier and certainly gives you a different perspective to life and we enjoy the most simplest of things now.  We have just returned from a cruise had a ball but looking around the ship at people who had lost limbs and no mobility at all certainly makes you humble.  As Andy says on this forum, everyday is a gift enjoy it.  Maggie

 

 

[maggiemayParticipant]

Hi

Sorry you are having trouble with Zometa my husband had flu symptoms after his first couple of infusions, but not to the same extent as you.  I read that if the drug was administered slower it reduced the side effects.  He asked for it to go in slower 15 mins originally to 30 mins and this helped.  You could maybe give it a go.  Maggie

 

 

[maggiemayParticipant]

Hi Donna

 

So sorry to hear the sad news of your Mum I could tell from her posts how much she missed Stephen. I loved her stories about her first trip back to France without him so brave and so sad.  My deepest condolences to you and your brother at this sad time.  Mags

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