Hi Vicki
Really lovely to hear from you and you are doing well. The fundraising ball is great idea! Of course you still feel involved, it’s funny how we have never met yet have been there through the toughest of times together. My Mum had 2nd sct last
August and is doing good, apart from now having a virus which will not clear. That started whilst in Spain on holiday, resulting in an unscheduled trip to hospital. I’m not on the forum much nowadays but pop in from time to time. Keep us informed about the ball. Good luck with it 🙂
Love Ali xx
Hi Helen
I haven’t posted in a while, but just wanted to say hello. It’s really good to hear you are doing well. I’m sure that you are just like me mum, uncomplaining to family. They too will think of diagnosis day and look how far you have all come and grown closer. Here’s to the next 5 years and beyond….I expect nothing less 🙂 xx
Love Ali xx
Vicki
I’m so sorry to see this news. Sending you love and strength at this sad time.
Ali xx
Vicki
I can’t believe I am reading this,my
Heart goes out to you both. I am so sad that you have been given this news. Like Richard says, what about a donor? There’s nothing I can say or do but I am sending a big hug and love to you both.
Ali xx
Hi Helen
Apart from low back pain, she says she’s fine! No treatment at present and next appt April. Nice hat…how was the wedding? 🙂
Work day so got to get up.
Hi Vicki and Andy
Love Ali xx
Hi Andy
Fab-u-lows!!! Well done xx
Hey Vicky
I am so sorry to hear your news. You are right, its not easier to take 2nd or even 3rd time round. Did Colin have cyclophosphamide added to the velcade/Dex regime? ( I think that’s what Tom had ) I also know nothing about Bendumustine, so cannot offer any advice. But I can send my warmest wishes and a big hug to you both. Let the consultants worry about the treatments, you guys have to concentrate your energies on getting through onto remission again. Private message me if you like Vicky.
Love Ali xxx
Vicki. It’s me!
I’m never on here, today I found posts from The lovely Helen and now you!
So sorry Colins relapsed.
Got to get ready for work now but will fill you in later.
Love Ali xx
Hello Helen
I rarely visit the site now, but a mix up with the alarm leads me to the time to pop in.
I’m very sorry to hear about your Dad, must have been a huge shock.
Film festival? I have definitely missed something there!
My parents are selling up…they have already moved into new house with my Nana, proving to be quite stressful I’m afraid! Good luck with your move, all hands on deck required!
Congratulations on your retirement 🙂
May the new treatments prove very successful
Mums story so far,
Relapse due to chance finding of plasmacytoma
5 cycles of velcade/Dex
High dosage of radio therapy to rib with plasmacytoma
Talk of 2nd sct – decided to save that til later
Next appt Jan 2015
Takes forever to type on my phone!
Kids are up now so its action station s!
Love Ali xx
Hi,
My Mum also hated the curls! Don’t panic ladies it will soon be back in some sort of style. Keep having a little trim. Get rid of the ends. 7 months post sct and you should be close! Meanwhile, have you tried Argan oil in yiur hair? Just a little bit,seemed to relax the curls a little. Smells nice and gave Mum a sense of “doing her hair”.
Love Ali
Oh Eve
I am so sorry to hear your news of Slims passing. You both fought so hard against this disease. My love goes to you and your family
Alison x
Andy, marvelous news for you. Seems the regime is good for you. As David says …just keep going x
Hi Vicki
As you know we are going through the same thing. Started back on the rollercoaster, Mum just completed cycle 1 of Velcade/Dex.
I completely know how you feel 🙁
Any time you need to rant, feel free!
Love to you both
Alison x
Hi David,
Such wonderful news! I am thrilled for you. Fingers crossed for July.
Love Ali xx
Really pleased to hear it Helen! Tea at the Ritz , ooo I say! Its my 40th this year and im wondering what special treats I will be getting from my hubby, probably the usual last minute rush to Asda for pj’s, a book and a pack of 5 pants. One friend was whisked to Las Vegas and another got a range rover, so I would like something similar! Hehe, I will let you know!
Mum has been told she is out of remission, we are devastated. So we are buckling up ready to jump aboard the rollercoaster again. Cant understand it though, pps are at 4 and BMB was ok. Its the plasmacytoma that has popped up that has caused the need for treatment. So Velcade is to start on Monday and Thursday (2 weeks on 1 week off) is that the usual?. After the Velcade she is to move straight on to 2nd SCT, that upset my Mum more than anything, its all very fresh in her mind – she had the first in Aug 2012. Only 1 or 2 sessions of radiotherapy are required now as the chemotherapy will work also on the plasmathingy. Shes also to have root canal work, and that has to start before she can have the oral equivalent of Zometa. Shes been advised not to have the tooth removed, yet the bugger in question is right at the back and anyone else would just have it out. So all in all we are pretty p***ed off, and I for 1 feel that this is such an injustice. Hey ho, whatever it takes she says. Sorry for the rant…..you did ask 🙂
Any tips for when on Velcade would be greatly appreciated.
Anyway, bathtime in this household, catch you soon
Love Ali x