[annlynnParticipant]

hy ian i had my transplant august 2014 not in southhampton. but in. newcastle freeman i agree with most of what liz. has just said its certainly not as bad as. i thought it. was going. to be i was in seventeen. days first bit all smooth. a few temperature spikes in themiddle bags og
f stuff going. in. for a few nights. then again as liz. said. you feel you turn a corner i did loose all my hair on day fourteen or so but was ready with. wigs ect and make up on to face the world consultant to l d me thepeople with the positive mental attitude do the. best. so you go for it . i took a book in with me and wrote a journL of how i felt daily then if i need another sct ill refresh my memory to kn o w. i got over the bad days. good luck watever you decide but if your in early dec. i bet your having. xmas lunch at home with family xx. Ann

[annlynnParticipant]

well done. you !!!! its a lovely feeling. when. something feels its going right for a change. you enjoy. the golf and keep well best wishes Ann ..

[annlynnParticipant]

Richard. just read to post to eve wich is. very true about us all needing. inspirational people on the forum. we all need the encouragement . Have you hear how tom is. always read his posts but he doesnt come on. the forum. im. not. on. facebook. Ann x

[annlynnParticipant]

Good luck for today and the days that follow everyone will be rooting. for kev scarey time but like you say you no what to expect like having your second child !!! not. quite good luck. xxxAnn x

[annlynnParticipant]

hello . everything. your experiencing is the norm with these drugs one minute your in the debths ofv despair cant. sleep walking the floors i used to sitt writing notes about everything. even my funeral plans. then the next day i wanted to m a ke large family meals and buy them all gifts if treatment had lasted more than the six months id probley be stony broke . its all part of the treatment and it will get. better be sure of that. I had sct after my cdt treatment and at present im drug free which is a blessing hang on in. xx

[annlynnParticipant]

its so lovely that youve popped in to the forum to update us. Eve i always read your posts and really loved your. very comman sense approach to mm i always thought how very lucky sllim was to have you by his side . I came out of the freeman hospital after my sct the same time you lost your belovedd slim. i alw as ys remember thinking iif i can be as strong as this man. ill be ok glad your doing ok enjoy your moterhome it sounds like its keeping. you going. lots of love Ann xx

[annlynnParticipant]

ha ha peter. fun time might be pushing. it. a bit !!!! if my husband hospital visiting. while. i. throw up or holding. my. hand. sitting. on. the. loo sounds like. fun. then well ???? it takes all sorts. but what i will say. like rebbecca always says. it is dooable I wrotea diary every day and when. i. look back there. was some. scary days but i came through the other end. xx ps i was 59 xx

[annlynnParticipant]

hy peter. In response to your questions i had my harvest 30th and 31st july last year addmited to freeman hostital 12 august chemo same day late ish at night my husband stayed till it was all in ha ha s
i was sucking ice pops like a goodun !!!! stemcells back in 24 hours later in hospital 17 days in total. hang on in. its worth every minute to get yourself in remmission. not sure about the statistics are about times and length of remission everyones diffrent im just tickung of my first year and praying for t he next one. best wishes. Ann xx

[annlynnParticipant]

mrs goose .. i have like yourself had RA since i was 31 got mm 2014 had my sct in august 2014 i wasnt aware methotrexate had any conection with mm i was taken of it as well but why were we never informed of this !!!!!! nice to hear youve managed a second sct given me hope xxx

[annlynnParticipant]

so sorry to hear this sad news colin put up a brave fight . but so did you vicky my thoughts are with you and your family xx

[annlynnParticipant]

hy peter. sorry you had to join the forum in the first place but you will find lots of usefull bits on it . i like yourself. had cdt which is similare just not the velcade all these treatments are similar for side effects. fatique. shakey feeling. breathlessness i didnt drive while on the treatment because of them. but it gets better i hadd weepy days then manic days wanting to do to much but it does settle and if it gets your proteins down. well worth it. i wentt on to. have sct in august and now in remmision so good luck with it all

[annlynnParticipant]

hy karen. i had my transplant last year harvested on 31 july transplant 12 august. A hard 17 days but worth it. ive been in remmision since and like lots of us on this forum im enjoying life again and enjoying the simple pleasures life brings family. good friends nice wine. ha ha .keep strong during the process take a notebook with you and on your good days write down all the lovely things your going to do when your well
ven the simple stuff itll get you through when your sure youl never feel yourself again .Then one morning. youll wake in hospital knowing youve turned the. corner. the. best feeling ever when they tell you your blood counts. rising good luck. will be rooting for you xx

[annlynnParticipant]

morning richard i so agree im a year in remmision enjoying all the good things in life sometimes the simple things like you say our family values are so reasessed i olso. cant worry. about next monyh or next. year. im. livving. verry much in the here and now simple things like a walk along the beach at south shields or a lunch in the boathouse fill.me with. joy bye the way. how is tom. never see him on the forum these days. keep on. smiling everyone

[annlynnParticipant]

hy bijou. i like yourself. waited a while going through the whole process of misdiagnosis till 2brokeb vertebra showed up and the inevitable myeloma diagnoses . That was jan 2014 since then. cdt and a stem cell transplant in august 2014 in the freeman newcastle im in remmision and like most people on this forum. live my life to the full. holidays weekends away when possible and enjoying my. family remember there is life after this. shock wears off someone on the forum says to think of it as a chronic illness rather than anything else we all hope a cures around the corner. good luck xxx

[annlynnParticipant]

i read your post with intrest but. please be aware of so called wonder drugs as there arnt any. we would all be buying. ebay miracles

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