Hi Angelina, I think its a great idea, for both you and your daughters – we lost dad on 17 December and mum started a memory box after his death, I think it would have been a good idea for him to have been involved (he was told there was nothing else to be done 13 November so the time was there but sometimes you just don't want to acknowledge it)…[Read more]

One of the first things they did when my dad was diagnosed was to take all of his teeth out, he was told that the treatment would attack his teeth, it always annoyed him that he had to wear the falsers and couldn't really enjoy his favourite things!! Glad your senstivity is fading David.

Hi Roz,

Glad you managed to get through your reading, it must have been hard but you should be proud of yourself.

We are 3 weeks on from my dad passing and 2 from his funeral and we are still all in a bit of a daze, not sure if its the time of year it has all happened or if this is normal.

Hope you are looking after yourself too (have to…[Read more]

Hi Roz,

Really not sure what to say except I wish you well for Friday. It will be a hard day for you all and my thoughts will be with you.

My family like yours are still going to continue to raise as much money as possible for Myeloma UK.

Donna xx

Sorry to hear your news Roz. My thoughts and prayers are with you and your family.

Donna xx

Hi Roz,

I have been following your posts for a while now, hope you start to have better health for yourself soon – my dad just passed away last Friday so I know what you are going through with the waiting.

Please don't feel guilty for taking time out to look after yourself – I'm sure your husband would want that for you.

My thoughts are…[Read more]

Thanks all for the lovely messages. Dad's funeral was yesterday – it was hard but the services (one at church at one at crematorium) were both lovely and very comforting and the number of people that turned out to pay their respects was astounding.

My dads last words of any meaning were for no-one to fight and fall out so that will be his…[Read more]

Hello,

It is with a heavy heart that I let you know my dad passed in the early hours of Friday. It had been a tough 3 years for my dad but he never complained once – and as sad as I feel at least he is no longer in any pain.

Thats great Michelle – congratulations to your mum – long may it continue.

We have had more bad news – Dad got taken into hospital last Sunday and we were told on Monday that he only has days left. Its been really hard but they have told us they will keep him comfortable – had to chase them up yesterday a bit but he was comfortable when I left him last night.

This b l o o d y myeloma is a nightmare!!

Will do – thanks Michelle. Having a family tea tomorrow, definately trying to make the most of the time we have. One of my sisters is in the process of trying to cancel/postpone her holiday – Australia/New Zealand for 4 weeks leaving New Years Day.

Hope your mum get the itching sorted out, that was one of the side effects that my dad didn't…[Read more]

Hi Michelle,

Didn't need to go – Dad saw the consultant last Saturday when he was taken in re his confusion. The second opinion was worse than the first – now instead of months its weeks.

On the plus side he's not been confused this week and after all the fluids, blood, platelets and whatever else they gave him on Saturday his counts have…[Read more]

Thanks all. Hopefully my dad is able to defy the Dr's too.

Hi All,

Dad got out last night – he is 57. They managed to give him fluids and pomidronate to lower his calcium and more blood so he is alot better today.

Although whilst he was in the second opinion Dr came to see him with an even worse prognosis, his myeloma is very aggresive and can no longer be treated with anything and they have now…[Read more]

Thanks Michelle, – just speaking about it on here has been a great help too, hope all is well with your mum.

Have spoken to the Myeloma nurses who have been a great help. Getting a second opinion on Thursday with what we have been told is the best specialist in Edinburgh.

Dad was really confused today so we phoned the oncology unit who let…[Read more]

Hi Michelle,

He had CTD before his stem cell transplant (july 08) and by November 09 the myeloma had relapsed – he was on velcade for a while but suffered badly with neuropathy so they moved him to lanolidomide which they said his paraprotein count was increasing even though he was taking it which is why they have come to the decision they…[Read more]